October 16, 2009. Alucard Lezard was born, his older sister Clarence Angela gave him the nickname "Neji", the name of her favorite anime character. Shes so happy to have a little brother she can cuddle and show her affection to. So happy and proud of Neji, she even brag to her classmate how cute her brother is. But as time goesby we all notice something off with Neji. At the age of 1 he seems normal, some words came from him even though its not clear but still his trying to communicate and imitate. However when he turns 2, it worries us a bit since for his age he should at least say Mommy or Papa fluently, but was told that he might be a bit late since hes a boy and we have to give him more time.
We even consulted his pedia about it saying that we should have him checked for Autism but I was in denial and talked to my husband Neil to give Neji more time.
Unfortunately, no progress whatsoever with our little Neji. Then we decided to have him checked for Developmental screening and as we expected he failed. We were referred to a Developmental Pediatrician and after a series to evaluation and test he was diagnosed to have Autism Spectrum Disorder and its a lifetime condition. Meaning they cannot say if he can outgrow it or not.
This broke my heart to tiny little pieces. I felt like crying but I cant. The doctor even told me its okay to cry but I felt numb. I think I cried when I broke the news to his Grandmother on the phone.
"Lifetime Condition" echoed in my mind. A thousand questions and scenarios flooded my mind. What if he's gonna be like that forever? Who will take care of him when Im dead? Where will we get the money to support his therapy sessions and test? How about school? Will he be able to finish school? Will he have a family of his own? Just a few questions thats torturing me.
Fortunately, I have a daughter and husband whos loving and wiling to take care of him and protect him. There are times they runout of patience that it torns my heart. I always explained to them that Neji is special and we should understand him.
We got a long road ahead. I know this will not be easy. But in my heart I know that God is with us and love will get us through it... for the sake of our little "Neji"...
